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Is There Hope?

Is there hope?

It’s a question that’s come up numerous times since I started on this journey, although the question is rarely that literal. I find it’s what many people who are lost, suffering, or confused are looking for. They’re looking for some tangible anchor to tether onto, some sign that whatever they are going through will end, and that they will come out better on the other side of whatever challenge they are facing.

I have a difficult, strained relationship with hope. You see, I never really experienced the emotional load that comes with hope until I was 29 years old, sitting in a Licensed Clinical Social Worker’s office, being diagnosed with Bipolar Disorder. I experienced hope because this person could see something in me that I could not. Diagnosis gave a name to what had been plaguing me since I was a teenager. I remember thinking maybe this is the reason I couldn’t hold job consistently, kept blowing up relationships, kept having such strange thoughts and feelings. If my problem had a name, then I could understand it and find a way to overcome it.

I distinctly remember the feeling because it was so foreign. I had never felt hope before. I had never really experienced the shift in mentality and warmth that hope provided. But you know what I had experienced by then?

Hopelessness. So much hopelessness. I never looked forward to my future. I always assumed I would end up killing myself by 30 at the latest. I had lost two people I cared about, one to homicide and one to overdose, and witnessed the fallout from a relatively close point of view. I had experienced living in poverty. There’s a thing about poverty that I feel like is never communicated well in the depictions I see of it – the weight of hopelessness.

I distinctly remember how heavy everything felt, like each and every person that understood how screwed they were were like Atlas, bearing the weight of the sky on their shoulders. I’ve never been able to see or feel that heaviness in media depictions of poverty, whether it’s on your nightly news or some fictional story.

And I think it’s those experiences, combined with my own Major Depression and Bipolar Disorder, that makes me hate false, superficial hope so intensely.

“Hate, Dennis? That’s a strong word. Are you sure you mean hate?”

Fuck yes! It took me years to unwind the visceral, gut reaction of anger that resulted from bromides like, “It’ll get better!”, “You just have to have faith!”, and “People care about you!” Because none of those things that I perceived to be superficial bullshit ever made me feel as though as it were true. None of those things really eased the crushing weight I felt on my own shoulders. It all sounded like so much pandering nonsense.

But, after entering the advocacy or activist space, whatever you want to call it, I came to realize that this perspective was off and I was judging the people who made these statements far too harshly. You see, when I really started taking my blogging and work seriously, I quietly promised myself that I would not rely on superficial or false hope. I would make every effort to find sources of real, tangible, actionable hope to offer.

I was nowhere near close to understanding how fucking difficult that would turn out to be. Not only do you have the anger, fear, and alienation of many mentally ill people towards the mental health industry and society to contend with, a lot of it filled with misinformation and manipulation, there’s also the near infinite number of perspectives in people who are receptive, some fueled by mental illness, others fueled by what people believe and how they’ve experienced their lives. Each and every person is their own individual jigsaw puzzle composed of a billion small pieces, all of them sky blue with no corners to start from. (Yeah, that’s right. I used a jigsaw puzzle analogy. …do people still do jigsaw puzzles? Hm. Anyway…)

I do not believe that hope is as strong or powerful as it is portrayed to be. My perspective on this shifted drastically after getting to know other activists with different perspectives and forming not quite personal, not quite professional friendships with mental health professionals and social workers involved in things like outreach.

I think hope is more like a match – you can strike it (inspiration) and it will create a light (hope), but the factors that contribute to hopelessness will, sooner or later, swallow the flame if it is not used to ignite a greater fuel source (a course of action that provides confidence through tangible progress).

I came to realize that a lot of people who are offering those words that made me feel so alienated weren’t doing it because they didn’t understand, it was because they do understand. They understand how difficult it is to not only strike the match, but get the actual fuel burning. From the start, in every conversation I’ve had with people, every support activity I’ve participated in, I look constantly for the tethers that the people I’m talking with can hold onto that will set their fuel ablaze.

But, sometimes, I just can’t see it. Sometimes all I can see is that person is going to need to have patience while things play out or come together. That is a difficult message to deliver to someone in a way that won’t send them crashing into the abyss or destabilizing.

Hope, like inspiration, is not something that will carry a person for a long time. And the process of confronting one’s problems and working to overcome them is not a fast process. It can take years. Personally, I feel like I’m more on a lifelong journey than anything else. Because every time I feel like I fix one thing and learn as much as I can about that, I see something else I can improve that will help bolster my overall wellness and well-being. I don’t know if it’s a process that will ever end for me. Maybe it will? I don’t know.

I’m writing this blog post because after a few recent series of conversations with different people, they all asked the exact same question – is there hope? And that’s a question that I can’t always answer. I have to say that in most situations I’ve been able to find reasonable, tangible anchors for people to hold onto. But sometimes I can’t. Sometimes it’s because I don’t know enough about the person to identify something tangible, other times it’s because I know the person is just trying to manipulate me by providing a fatalistic perspective that they are painting as hopeless to garner sympathy, and other times it’s because there is no other answer than needing to have patience while a situation runs its course.

Furthermore, the perspectives that a lot of people have about hope are just not rooted in reality, as mine weren’t at the start of my own journey. The perception, that came from somewhere and is often repeated, is that we mentally ill people can recover and live a life just like anybody else! Well, that’s sort of true. There are some people who reach that level of recovery. On the other hand, there are a lot more people that don’t – and it’s not that they don’t recover.

What I find to be more common is that through a lot of personal work, therapy, and meds, many recovered mentally ill people get their symptoms under control which allows them to conduct their life – but they still have to make allowances for dealing with their mental illnesses or traumas. We don’t necessarily live our lives like people who do not have this additional weight to carry, and that’s okay. It doesn’t mean that your life can’t be good, productive, or happy. It’s just different. It’s not what is advertised.

I don’t think I necessarily make a good example for mental health recovery because of another super common question I get – are you a happy person? That’s also a difficult question. And it’s difficult because “happy” is an emotion, and emotions come and go. My default state is not happy, so technically, no, I’m not really a happy person.

I’m more of a melancholy person who is able to experience happiness, which is a drastic improvement from the morbidly depressed and unstable person I was for a long time. I tend to think of myself as more of a peaceful person, that is, being largely at peace with who I am and my life thus far. I don’t think anyone would look at me and think, “That is a happy person.” I’m usually mired in my own thoughts and have whatever the male equivalent of resting bitch face is. Resting dick face? Mmm, no.

I would also consider myself an optimist though – because I do have hope for a lot of you and your loved ones – even if I can’t see it myself and still don’t feel right saying the words that contributed to making me feel so isolated and alone for such a long time, even if I have to sometimes say, “I don’t know.” If I didn’t, I would have gave this up a long time ago.

And, an additional note to the other content creators who read my work or who have some interest in trying to spur people to action – it works much better if you tie your message to a tangible action. The most common one I use is, “Have you talked to your doctor/counselor about this? That’s really something you need to explore with a certified professional.” It provides a safe course of action and a tangible anchor for people to tether to. I find a lot of people sit on the fence on whether they should or shouldn’t and often do need an affirmation that it’s the right course of action. Of course, that gets more complicated if the person has had bad experiences with the mental health industry, but that’s kind of outside of the scope of this post.

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Can a Person Recover From Their Mental Illness?

Are you a kind, compassionate person? Are you the type of person who looks for and sees the best in everyone? Do you believe that many people can heal or recover from their mental illness? Believe it or not – I do. But, that’s not the most important question. The real question is – will they be able to recover?

That is an entirely different question altogether. Quite a few people I cross paths with want to hear a story of hope. It’s clear from the questions they ask and the statements they make. They are less than impressed when I tell them the truth; that my recovery was largely fueled by fear of my own mind, being stubborn, and anger.

People cling to hope because it’s positive and romantic. And yes, hope is an important thing because it can keep people moving through dark times. However, there comes a point where hope can be harmful because we invest so much emotional energy in how we want things to be as opposed to how they are. We spend too much of our time in the future instead of the present.

Do I believe that most people can recover and attain a higher quality of life? Yes. Do I believe that they will? That’s a more complicated question. And here are a list of reasons why…

1. The person has to want to change. My biggest system shock came with the realization of how few people want to change. They want something easy, a therapist or a pill to fix them. Recovery is like 98% personal work, 2% clinical assistance. That personal work includes reevaluating one’s emotions, how one conducts their life, how one interacts with others, learning management practices and actually implementing them, and so much more. Every person I know that has reached a high degree of recovery from Depression or Bipolar Disorder is a very different person from who they started off as. Why? Because the attitudes and emotions that these mental illnesses foster are often harmful and toxic. They must be changed.

2. The person needs adequate resources. Numerous people just don’t have access to the resources they need or reject the ones they have access to. Medication and doctor appointments can be expensive. And yes, I know, “Some have sliding scales!” Which means little when you have next to nothing and are barely able to keep your head above water. I’ve watched people absolutely refuse to request help from charities or other resources when they would have qualified because of their own pride. I was one of these people, too.

3. The person needs to be okay with changing. This is different than the first point because a person may decide they want to change, but not like how they change. I find this to be especially true in Bipolar people who trend towards the escalated side of the Disorder that is pronounced, but not necessarily destructive. But even a destructive mania can feel absolutely wonderful to the person experiencing it. And I’ve met several people who view it as their edge in their art, career, or social life. Real emotions are so quiet compared to what a Bipolar person experiences in escalation. Some people don’t want to give that up. On the other side of that coin are the people who are content to be miserable and depressed. Life is just horrible and they feel more comfortable being a victim to it all.

4. The person can make bad decisions. Many people are a bad decision or two away from serious repercussions. “I feel great! I don’t really need this med.” “I’m going to skip this doctor’s appointment.” “One night of hard drinking or drugs isn’t going to kill me.” “I didn’t call in my prescription early enough and they are out of my med until next week!” “I’m not really mentally ill. Everyone else is the problem.” I can talk until I’m blue in the face on what to avoid, but people insist on learning the hard way time after time.

5. Even if the person makes all the right decisions, the pursuit of wellness can still go sideways. Medication can have negative reactions or unmanageable side effects. A person can be medication resistant, meaning their body just doesn’t react well at all or positively to medication. Trying to push through past damage and trauma with a therapist can make a person worse before they start getting better. Many mental illnesses can get worse with age, not better. Bipolar Disorder is one of them. And then you have dealing with the general stresses of life on top of everything else.

And none of that is including the people who like having their mental illness as an effective “Get Out of Responsibility” card. Abusers and manipulators regularly use hope and compassion against their victim. The victim carries the hope that a toxic person will recover, feel sorry for their actions, and everyone lives happily ever after. That rarely happens.

Even if we do everything right, things can still go completely wrong. And getting people to want to change is the hardest battle of all, because change is fucking difficult and scary.

I know that a lot of people are going to take this post as me being negative, but I’m not. This is the reality that I’ve come to know in trying to help other mentally ill people and their loved ones walk their own path. It’s still difficult, even in an optimal scenario. Hell, it’s not like my life is where I want it to be yet either. Self-improvement is a marathon, not a sprint. And I still get shit wrong, too. All you can do is the best you can, really.

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A Meeting With Vocational Rehab

Today I had a meeting with a Vocational Rehab Counselor to help determine if I’m eligible for help for the career path I want to pursue- that of the Certified Peer Specialist. The Counselor that did my interview has been working in Social Services for 45 years and had never heard of this position before today. He scheduled me for a psych and vocational assessment which I will have in about a week. They will help determine if I am suitable to perform that type of work.

For those that don’t know- a Certified Peer Specialist is a recovered alcholic, addict, or person with mental illness who has recovered and helps other people on their recovery path. Instead of going to college, our higher education is the catastrophic shitstorm that is often our lives. You only end up doing about 60 hours of work training for certification.

The entire time he’s going through his spheel about how I might not be suitable and how it might not work out; I’m sitting there thinking- ‘I’ve essentially already been doing this shit since I put up my web page. I answer questions, give thought out responses, try to urge people to have goals in mind for their wellness, and just try to be there for the people I cross paths with. I’ve dealt with some really difficult people in person on several occasions. I know I’m suited to this kind of work.’

And then he made the simple statement of, “And if you’re not suitable, we can probably help you find something else.”

What he does not understand is that there is no “something else” for me. I’ve had at least 25 fucking jobs in my adult life. I know the difference between a shit job and a pursuit of passion.

I sincerely hope that each person reading this post finds at least one thing in their life that they are so utterly passionate about that everything simply makes sense. I will get training and I will find a paying job in this field even if it means I have to forgo assistance from the government.

I spent a fucking lifetime trying to figure out why I had this brain, why I was so smart but never able to get anything really accomplished. Why did I survive the things I did to try and unmake myself? What good was the emotional isolation and social dysfunction? Does any of it matter? Yes. Yes it fucking does when you’re trying to hammer through the walls we nutjobs build to keep normals out. It all matters as individual blocks in a sturdy foundation of understanding and knowledge for something served up to you on a silver platter later in life.

The Counselor asked if I had considered other paths. I said “no”, because to me there are no other paths. I know exactly what I want to do and have a reasonable idea of how to accomplish it. I don’t give a fuck if I have to sit in a McDonald’s or Flying J parking lot to piggyback their free wi-fi to do marketing work on my laptop to make ends meet while I work on it. I will find a way to accomplish this goal. There has never been anything so clear to me in my life.

But I’ll go through their hoops and see what comes of it. I’m sure the psych will say the same thing he said before and what the other professionals I’ve dealt with said. “He’s very intelligent and self-aware. He seems to lack some social skills and maintains a disheveled appearance. He possesses strong analytical skills and expresses himself eloquently.” And believe me, it’s not aggrandizing. I do my best to keep my head out of my ass. Still kind of flattering to have your lawyer tell you the judge was impressed with your intelligence after your hearing though.

I feel like it would be a sin to not use this body of knowledge that life has given me.

Anyway. Just thought I would share a bit with you guys about this personal journey. Not a ton happens in my day to day on the mental illness front personally. Nowadays more of my energy goes to others that need it. And I’m not going to go around blabbing about other peoples’ business without their express permission.

I’ll probably write about the eval and meeting with the psych when that goes down next week. Just have to see how things go.

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A Random Affirmation

I realize that I am very inconsistent with providing updates and useful information. I suppose I should have accounted for exactly how social I’m usually not before attempting to reach out to people and connect through social media means. But hey, hindsight and all of that. It isn’t that I don’t like people. It’s more that in addition to being Bipolar, my family has a history of High-Functioning Autism. Several of my social processes are just broken. I’ve learned how to adapt to them in the past few years; but it still requires a shitload of mental energy. (Also, my word processor didn’t detect shitload as being a typo- which amuses me greatly.)

But! Today I want to provide you an affirmation. I know a lot of us deal with a whole lot of bullshit on a daily basis from dealing with ignorant people to just trying to keep things together in our minds. Today may be a shit today, tomorrow may be too; but just keep moving forward. Keep trying things. If one medication or technique doesn’t work- try another. Keep trying. Keep pushing forward.

Things will never change unless you keep pushing yourself. You can conquer the chaos in your mind. You can own your mental illness instead of it owning you. Yes, it requires so much work and effort. No, it’s not fair. But neither is life. You can spend your time spiraling into depression, dwelling on it; or you can do something about it.

If I can do it- you can do it. Educate yourself on management, how medication really works, and pull out the stops to claim your mental wellness.

It’s glorious to wake up in the morning and have my first thoughts be of anything other than death or just sleeping through the day. I want that for each one of you as well. Be kind to yourself.

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